Baby Yuki diagnosed with Biliary Atresia

Posted 11:10 PM by Mezhal Ulao in Labels: ,

Hello friends!
I encountered a blogger friend seeking help for his daughter who was diagnosed with Biliary Atresia. The Belialba family is in need of P4.0million to have the medical procedure (liver transplant) be done within the next 3 months to save the baby. Said transplant, upon availability of the money, will be done in Chang Gung Memorial Hospital (CGMH) in Kaohsuing, Taiwan. Below are the contact details of the family:



Mio Cell Phone:0918-9089050
Mio Wireless Landline: 4094021
Mio & Jen Taytay Landline: 669-0409
Email & Chat: miobel@hotmail.com
jmv_25@yahoo.com
rrbelialba@hotmail.com

For more details visit http://dedicated2yuki.blogspot.com/.

From Wikipedia:

Biliary atresia is a rare condition in newborn infants in which the common bile duct between the liver and the small intestine is blocked or absent. If unrecognised, the condition leads to liver failure but not (as one might think) to kernicterus. This is because the liver is still able to conjugate bilirubin, and conjugated bilirubin is unable to cross the blood-brain barrier. The cause of the condition is unknown. The only effective treatments are certain surgeries, or liver transplantation.

To know more about this dreaded illness refer here: Biliary Atresia

Additional Information From the American Liver Foundation about Biliary Atresia:

What happens after surgery?
The aim of treatment after surgery is to encourage normal growth and development. If bile flow is good, the child is given a regular diet. If tests show that bile flow is reduced, a low-fat diet and vitamin supplements will be required, since the absorption of fats and vitamins is impaired.

What is the outlook for babies with biliary atresia?
Without successful treatment, few children with biliary atresia live beyond age two. In some cases, where the Kasai procedure is completely successful, the child may recover and live a normal life. However, in most cases, even when surgery is successful, patients will suffer gradual damage to the liver. These children will need specialized medical care throughout their lives, and many will ultimately need a liver transplant.

Is a liver transplant the solution?
In children with biliary atresia, a liver transplant is generally not attempted unless the Kasai procedure has been tried. In cases where that operation is unsuccessful, the child may become a candidate for a liver transplant. Success depends on the timely availability of a matching donor liver. Fortunately, survival rates for liver transplant recipients have increased dramatically with improved surgical techniques and the development of drugs that help overcome the problem of organ rejection.

What can the family do?
Watching a newborn suffer from biliary atresia is a heart-breaking experience. Parents are frustrated because so little is known about the disease and treatment options are so limited. Many parents find comfort in support groups because it allows them to talk to other parents in similar situations. Finding out that others feel the way they do, and learning how other parents are coping with a child’s disease, is often a great comfort.

More information from the American Liver Foundation about Biliary Atresia

Overall, no child should suffer from a disease such as this and based on the research information that I have gathered thus far - 1 out of 15,000 babies born suffer from this disorder and most of them are girls. It is a parent's worst nightmare to see their newborn baby suffer this way and hopefully you get to see and feel the gravity of this concern today... Here I ask you make a difference. Even just a small donation could go a long way besides, how much is a child's life really worth to you.

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